Down Syndrome Association of Nigeria

The Down Syndrome Association of Nigeria is an organization that was founded by the mother of one of my friends, to fill a need that she saw in Nigeria to raise awareness about Down Syndrome. I have visited the website a few times, and there is a lot of really useful information for the public about Down Syndrome. We as a society have some misconceptions about DS, and it’s great that there are sites like this to sort us out, and even better, there are people in Nigeria who have recognized the need to raise awareness about DS in Nigeria, and provide a place for parents of children with DS, or teens and adults with DS, to get together.

And it is this goal of raising awareness that brings me here to ask you, my dear readers and bloggers, to help this organization out in any way you can. Of course financial donations are always welcome, especially at this time, and I am going to quote from a recent email I received from the organization which explains why:


And we wish to make an urgent appeal for help, on behalf of the underlisted babies who have been diagnosed with serious heart defect:

Ajoke Taofeek (F) – 9 months
Felicia Oyinloye (F) – 12 month
Etim Gabriel (M) – 18 months.

According to the Consultant Radiologist, if surgery is not carried out immediately, the babies will not have long to live. As at a few days ago, there were four babies awaiting immediate surgery, but at the time of this appeal, one of the babies has passed on.

In view of the urgent need for an immediate corrective surgery so as to save the lives of the remaining three babies, the association is making urgent arrangements towards this, but are not financially in a position to bear the total cost hence the appeal for partnership/support in this life-saving venture. It is estimated that the total amount required for the corrective surgery on the three babies in India is approx =N=10.5m. These donations will be used for the sole purpose and benefit of the children
Any donations, no matter how little, will be highly appreciated. Please note that all cheques should be made payable to: DOWN SYNDROME ASSOCIATION OF NIGERIA or paypal payment to

If you feel led to help out financially, please do. I know you won’t regret it.

For those of you in Nigeria who would like to donate money in person, or volunteer your time, please call or visit the DSAN headquarters. They are located in Lagos, and can be reached by phone at +234 (1) 2704710, +234 (1) 8119718 or +234 (0)8032285545.

If you can’t help financially at this time, you are not off the hook! Here is some more information about donating your time and/or talents:

Volunteering connects you to our community of families, saves your organization money, helps you build a network of parents to share information, and helps increase public awareness. DSA Nigeria exists to help support your family’s needs, please help us continue the support.

Like talking to people? You’d probably be great at helping with our community efforts or staffing fund raising events that save us thousands of money.

Love parties? We’d love your help at one of our fundraisers. Or host a parent support group.

Got a special skill? We can always use writers, carpenters, marketers, etc.

Are you the quiet type? C’mon down and give us a hand in the office. Assist with mailings, answering phones, data entry, or preparing resource materials.

Have lots of friends? Help us organize a fundraiser. Start a support group. Head a team at the Buddy Walk Volunteering is a geat way to develop skills, fill in time, meet new people and make a contribution. It also looks great on a CV and makes you and the children feel good! For more info, please contact

Lastly, I consider myself to be a fairly politically correct person, but the section on political correctness when speaking of DS (link removed because no longer active) was a section that I found eye opening. Read it!

Please do what you can to help, or pass this post or the link to the website, to anyone you think can help. It would be greatly appreciated by the DSAN.

12 thoughts on “Down Syndrome Association of Nigeria

  1. WOW.. Unnfortunately yours truly is a semi-broke Grad student at the moment.. Will keep them in mind fpr hopefully when I get my 8 to 5 back in Naija..Sounds like sthng worthwhile for once

  2. its a great organization GNG…i had bookmarked there page some time ago due to something i saw on nr…but i hadnt had a chance to look at it. Thanks for bringing awareness to the cause.

  3. Its good to raise the awareness, especially as it is not well known in naija. it wasnt until it i learned about DS in school that I realized that some of the kids we thought were weird or crazy/mad back in the days, were just DS patients.

    I read an interview of a couple back home that tried to do that in naija too; their son was diagnosed with DS and they never heard of it until they watched a clip on tv.

  4. â–ºchayoma

    Yes o…congrats!

    â–ºDanny BaGucci

    I appreciate your interest in doing something to help when you're back in Nigeria. Thanks for the comment.


    You're still in blogville!

    Oh, I'm glad to see someone had heard of the organization. We'll do our best to spread awareness.


    You're right that there was definitely a need. I believe the founder had a child with Down Syndrome and realized that there wasn't the same sort of resources as there are abroad and aimed to bring that same idea to Nigeria. It seems to be working well.

    Perhaps the couple you describe could get connected with DSAN.


    You know, I think when it comes to adoption, a lot of people want to adopt as young a child as possible. I don't have actual figures but speaking generally, African children are not being adopted at the same rates as children in other countries around the world. To be fair, this to could be due to the other countries having more developed adoption policies, or being less expensive (somehow I doubt this, but it could be).

    One oyinbo family friend (a pastor) who is very close to us and his wife have two children, and they felt led to specifically adopt a DS baby. We have a woman of about 55 in our church who has DS, and he has known this woman for all of his life, and also through the church he was pastoring at, they got to know an individual with DS. They started researching the odds of children with DS being adopted and when they saw that their odds were far below those of other children, they felt God calling them to adopt a DS baby. It has been quite a journey for them. Their daughter has had a number of heart surgeries but she's getting healthier and they are just so in love with their baby.

    But anyway, back to you question (lol): I'm not sure many Nigerians are adopting. If they are, I don't think many would be considering DS children, in a similar way that not a lot of non-Nigerians are considering adopting DS children.

  5. Wow! Wow!

    I am so happy to hear this!

    I have actually been thinking about the need for such an organisation esp since I met one of the boys in the village with DS. There is a hunger in Nigeria for awareness on DS but also all types of mental illness. I believe people with mentall illness suffers the most. I will definitely take a look and will gladly contribute with anything I can.

  6. I'm most definitely interested…I Dont have much financially but i would like to know what else can be contributed.. I can also contribute with a skill..unfortunately i dont reside in Lagos..There is a growing need for this and I'm glad you shared.

  7. I will check out the website and see in what area I can assist. I know any little help does go a long way….well done for bringing it to our attention…

  8. â–ºAdaeze

    Thanks for your willingness to read up and contribute what you can. That's all we can do. It's tough times but as my friend told me, if everyone who visited their site contributed $2 or £5, whatever we'd get there


    Thanks for checking out the website!


    Thank you for your interest. Just do what you can, or pass this information on to those who might be in a position to help…that would still be you doing your part!


    hehe…the goal is to get better at speaking the language though!

    â–ºJide Salu

    Thank you! And just as you said, every little bit helps.

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